National Press Club

NCCN Patient Advocacy Summit on Equity in Cancer Care

Keynote address to highlight cancer concerns for the Navajo Nation. A 2015 study found that 85% of Navajo homes have uranium contamination due to proximity to abandoned uranium mines. Navajos living near these mines have higher levels of uranium in their bones than 95% of the American population. At the same time, the nearest cancer center is located more than 125 miles away from the reservation. Lynette Bonar, CEO of Tuba City Regional Health Care Corporation, the only hospital on Navajo land, will be joined by a caregiver to share his story.

To request a complimentary press pass, contact Rachel Darwin at darwin@nccn.org or 267-622-6624. Join the conversation online with the hashtag #NCCNPatients.

What: NCCN Patient Advocacy Summit: Advocating for Equity in Cancer Care

• What barriers prevent equitable access to high-quality oncology care?

• How can patient advocacy organizations have more influence on health care policy?

When: Monday, December 10 | 8:30 AM – 3:00 PM (Breakfast at 8:00 AM)

Where: The National Press Club – 13th Floor
529 14th Street NW
Washington, D.C.

Topics and Speakers include:

 Overcoming Disparities: A Case Study on the Navajo Nation

Lynette Bonar, RN, MBA, BSN, FACHE, Tuba City Regional Health Care Corporation

Brandon Canyon, Caregiver

 Language and Cultural Barriers

Gloria Zhang, PhD, New Tang Dynasty Television

 Men with Breast Cancer

Marc Futterweit, JD, Male Breast Cancer Coaltion

Elizabeth Franklin, LGSW, ACSW, Cancer Support Community Equity Programs

 Improving Cancer Care for the Underserved

Julia Trosman, PhD, MBA, 4R Oncology Center for Business Models in Healthcare, University of California, San Francisco

Christine Weldon, MBA, Center for Business Models in Healthcare, Northwestern University Feinberg School of Medicine

 Advocating for Stigmatized Cancers

Justine Almada, The HPV and Anal Cancer Foundation

 Working with Specialized Patient Populations

Lauren Corduck, MNO, OneInForty

 NCCN Guidelines for Patients®: Adolescents and Young Adults

Marcie Reeder, MPH, NCCN Foundation

 Panel Discussion: A Viewpoint on Cancer Equity from Patient Advocates

Lynette Bonar, RN, MBA, BSN, FACHE, Tuba City Regional Health Care Corporation

Donna Cryer, JD, Global Liver Institute (Survivor)

Dana Dornsife, Lazarex Cancer Foundation

William Foster, Kidney Cancer Association (Patient)

Cassadie Moravek, Pancreatic Cancer Action Network

Laura Ortiz-Ravick, MA, The Leukemia & Lymphoma Society

Michael Sapienza, Colorectal Cancer Alliance

 Panel Discussion: Identifying and Addressing Barriers to Equity in Oncology

LeeAnn Baily, MBBS, PhD, National Cancer Institute – Center to Reduce Cancer Health Disparities

Nadine J. Barrett, PhD, Duke Cancer Institute Office of Health Equity

Shonta Chambers, MSW, Patient Advocate Foundation

Natalie Dickson, MD, Tennessee Oncology

Liz Margolies, LCSW, National LGBT Cancer Network

Christine Weldon, MBA, Center for Business Models in Healthcare, Northwestern University Feinberg School of Medicine

The summit will also include welcome & remarks from Robert W. Carlson, MD, CEO, NCCN, and panel moderation by Clifford Goodman, PhD, The Lewin Group.

For more information and the full agenda, visit NCCN.org/policy.

# # #
About the National Comprehensive Cancer Network
The National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 27 leading cancer centers devoted to patient care, research, and education, is dedicated to improving the quality, effectiveness, and efficiency of cancer care so that patients can live better lives. Through the leadership and expertise of clinical professionals at NCCN Member Institutions, NCCN develops resources that present valuable information to the numerous stakeholders in the health care delivery system. As the arbiter of high-quality cancer care, NCCN promotes the importance of continuous quality improvement and recognizes the significance of creating clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers.

Clinicians, visit NCCN.org. Patients and caregivers, visit NCCN.org/patients. Media, visit NCCN.org/news. Follow NCCN on Twitter @NCCNnews and Facebook @National.Comprehensive.Cancer.Network.