National Press Club

NNPA/Pfizer Press Conference: New National Poll on Sickle Cell Disease

NNPA/Pfizer Press Conference: New National Poll on Sickle Cell Disease

September 21, 2017 10:00 AM

Location: Ballroom

NNPA/Pfizer Press Conference: New National Poll on Sickle Cell Disease
10:00 AM @ The National Press Club Ballroom, 529 14th Street, NW, Washington, DC 13th Floor

Join Pfizer Rare Disease, the National Newspaper Publishers Association (NNPA), and Howard University as they announce the results from a new national poll designed to deepen understanding and gauge perceptions around sickle cell disease (SCD) among African Americans in the US.

SCD is a lifelong and debilitating disorder that affects red blood cells. In the US, it is the most commonly inherited blood disorder, and more than 90% of individuals with SCD are African American. In fact, SCD occurs in one out of every 365 African American births.

The National Poll of African Americans on Sickle Cell Disease Awareness dispels several long-held misperceptions about SCD among the African American community, such as mistrust of the medical community. In addition, other key findings include that while the majority of respondents who self-identified as African American were familiar with the SCD, only a third were aware that it disproportionately affects people of African descent, demonstrating a critical need for education and awareness.

Presenters at the event will include Dr. Benjamin Chavis, President of the National Newspaper Publishers Association (NNPA), Dr. Kevin Williams, Chief Medical Office, Pfizer Rare Disease, Michael Goettler, Global President, Pfizer Rare Disease, and Dr. Terri Adams-Fuller, Associate Dean, Howard University College of Arts and Sciences. These individuals will discuss the findings in greater detail as well as provide insights on how to further enhance the much-needed disease education and awareness among this community.

The press conference will begin at 10 AM, followed by a Q&A session.

More information about SCD can be found at www.Pfizer.com/RareDisease.

FOR MORE INFORMATION ABOUT THIS EVENT, CONTACT:

Steven Danehy
212-733-1538
Steven.Danehy@pfizer.com